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HDQLIFE™ measures were developed through a collaborative, multi-site research initiative to construct psychometrically-sound and clinically-relevant health-related quality of life (HRQOL) measurement tools for individuals with Huntington's disease (HD). This initiative was sponsored by the National Institute for Neurological Disorders and Stroke and through a partnership with PROMIS® and Neuro-QoL™.
HDQLIFE™ measures were developed through a collaborative, multi-site research initiative to construct psychometrically-sound and clinically-relevant health-related quality of life (HRQOL) measurement tools for individuals with Huntington's disease (HD). This initiative was sponsored by the National Institute for Neurological Disorders and Stroke and through a partnership with PROMIS® and Neuro-QoL™.
Development of HDQLIFE
Development of HDQLIFE
Learn how the HDQLIFE measures were developed and how the items were tested and validated.
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