Measure Development

HDQLIFE™ measures were developed through a collaborative, multi-site research initiative to construct psychometrically-sound and clinically-relevant health-related quality of life (HRQOL) measurement tools for individuals with Huntington's disease (HD). This initiative was sponsored by the National Institute for Neurological Disorders and Stroke and through a partnership with PROMIS® and Neuro-QoL™.

Development of HDQLIFE

Learn how the HDQLIFE measures were developed and how the items were tested and validated.

HDQLIFE Collaborators

Meet the individuals behind the development of HDQLIFE.

HDQLIFE Publications

See a list of HDQLIFE publications and their citations.