Frequently Asked Questions

It is free to use HDQLIFE, but please include a citation for any HDQLIFE measures used in a publication. You can find the citation information here.

The HDQLIFE measures should only be completed by persons with Huntington disease. They should be completed without assistance from anyone else (like a caregiver, care provider, etc.). There are no data for using the HDQLIFE measures as a proxy assessment.

No modifications should be made to the text and responses of the HDQLIFE items. The text and responses of HDQLIFE items cannot be altered in any way and still be considered an HDQLIFE item. If users modify the items, they cannot refer to these modified items as HDQLIFE. There are no data to determine whether or not a modified version would have the same psychometric properties as the original HDQLIFE item. 

English (USA)