Obtain and Administer HDQLIFE Measures

The HDQLIFE™ is the first PRO assessment in HD to utilize item banking and CAT methodology. The HDQLIFE measures are publicly available free of charge without licensing or royalty fees and are intended for use in research and clinical practice.

HDQLIFE offers two types of instruments:

Short Forms or Scales

Fixed set of 4-16 items or questions for one domain. These can be administered electronically or on paper. Each short form or scale requires approximately one to two minutes to administer.

Computer Adaptive Tests (CATs)

Items are dynamically selected for administration from an item bank based upon the respondent's previous answers.

HDQLIFE offers two forms of administration:

Computer Administration

HDQLIFE computer adaptive tests (CATs) require computer administration. HDQLIFE CATs, short forms and scales (except Meaning and Purpose) are available in:

Paper Administration

Best Practices in Administration

  • HDQLIFE self-report measures are intended to be completed by the respondent without help from anyone else.

  • The text and responses of HDQLIFE items cannot be altered in any way and still be considered an HDQLIFE item. If users modify the items, they cannot refer to these modified items as HDQLIFE. There are no data to determine whether or not a modified version would have the same psychometric properties as the original HDQLIFE item. If you do choose to modify items, please clearly specify how the items were modified in any publications or other publicly disseminated products.

IMPORTANT: Please include a citation for any HDQLIFE measures used in publications. If using a short form, please cite the publication describing the development of the full item bank. Citations information can be found HERE.

  • Use the table below to find the specific measure you need. You can download the PDF of the full item bank (if available) or the short form or scale. Each short form or scale requires approximately one to two minutes to administer. See scoring page or user manual page for scoring information.